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A service for pharmaceutical industry professionals · Sunday, May 11, 2025 · 811,527,032 Articles · 3+ Million Readers
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Duchenne News Monitoring

  • Published on May 8, 2025

    Help Bowen stay on the move

    Bowen Munzel, 12, was diagnosed with Duchenne muscular dystrophy, which affects muscle strength and bulk, at a young age. The incurable disease progresses over time to affect all muscles in the body, according to the Royal Children’s Hospital. A student at …

    Source: Shepparton News - Neutral
  • Published on May 7, 2025

    Young farmer to invest in ATV

    The Dealer wants to give a shout out to young farmer Michael Barry from Drumshanbo in Co Leitrim. Michael, aged eight, was born with a very rare genetic syndrome, which means that he has several disorders to deal with, including Duchenne muscular dystrophy …

    Source: Irish Farmers Journal - Neutral
  • Published on May 7, 2025

    Kilkenny family's desperate plea - 'Taoiseach - help us save Will's life!'

    The father of a little boy with a rare illness has made a heartfelt appeal for the HSE to fund treatment in America — before his son ends up confined to a wheelchair for life. Will Moore is just four years old and he suffers from Duchenne Muscular …

    Source: Kilkenny People - Neutral
  • Published on May 7, 2025

    Community rallies to help young Leitrim boy (8) with rare disorder pursue his farming dream

    Michael Barry (8) is the son of Cllr Brendan Barry and Nicola and a brother to Shauna. The family live In Drumshanbo, Co Leitrim. Michael was born with a very rare condition: Genetic deletion Contiguous XP21 deletion syndrome. The condition leads to the co …

    Source: Irish Independent - Pending
  • Published on May 7, 2025

    The 'Double Whammy' That Sent Sarepta To An Eight-Year Low

    Sarepta stock plummeted Wednesday on a "double whammy" that includes its trimmed 2025 sales outlook and a critical Food and Drug Administration appointment. In morning trades on today's stock market, shares of Sarepta Therapeutics (SRPT) …

    Source: Investor's Business Daily - Neutral
  • Published on May 7, 2025

    WAVE Life Sciences Earnings Preview

    WAVE Life Sciences WVE is gearing up to announce its quarterly earnings on Thursday, 2025-05-08. Here's a quick overview of what investors should know before the release. Analysts are estimating that WAVE Life Sciences will report an earnings per share …

    Source: Benzinga - Neutral
  • Published on May 7, 2025

    Solve FSHD to invest in Armatus Bio for ARM-201 development

    Venture philanthropy organisation Solve FSHD has announced an investment of $3m in Armatus Bio to support the development of ARM-201, an adeno-associated virus (AAV)-delivered microRNA (miRNA) therapy for facioscapulohumeral muscular dystrophy (FSHD). The …

    Source: Pharmaceutical Technology - Neutral
  • Published on May 7, 2025

    Sarepta Shares Slide To 2017 Lows On Revenue Cut, But Retail Bulls Remain Defiant

    Despite strong Q1 sales led by Elevidys, Sarepta raised spending forecasts and lowered full-year guidance, triggering a sharp market reaction. Shares of Sarepta Therapeutics plunged more than 26% on Tuesday, falling to their lowest level since 2017, after …

    Source: myMotherLode - Pending
  • Published on May 7, 2025

    Preventive measures needed for genetic diseases in infants

    HÀ NỘI – Around 40,000 children are born with congenital disabilities in Việt Nam every year, according to health sector statistics. Up to 80 per cent of children with genetic disorders are born to healthy parents or parents with no family history of these …

    Source: Vietnam News Agency - Pending
  • Published on May 6, 2025

    PTC Therapeutics (PTCT) Q1 2025 Earnings Call

    Image source: The Motley Fool. DATE Tuesday, May 6, 2025 at 4:30 p.m. ET CALL PARTICIPANTS Chief Executive Officer — Matthew Klein Chief Operating Officer — Eric Pauwels Chief Financial Officer — Pierre Gravier SUMMARY PTC Therapeutics, Inc. (PTCT -10.85%) …

    Source: myMotherLode - Pending

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